Friday, May 17, 2019

Thank you so much

Wow what a week. I didn't write last week because it was all very new, Priya was upset and in pain, and I was keeping an eye on Mirinda, so I'll write this week. Thank you for all the love and support you've given our family during this time. We have definitely felt it!
Priya is doing incredibly well. I'm constantly amazed by that kid. Last Wednesday I woke up with Mirinda, and Priya and Amy had already gone to the hospital to do some tests. The first thing Mirinda said to me was "Let's go see Priya" and I said OK. A few minutes later Priya called us and said she wanted us to come up.
We got up there and they had given Priya some Valium to help calm her down, so she was pretty loopy, which made it pretty hilarious to talk to her. She wanted to come home so badly, and it's a horrible feeling as a parent to know what you're child is about to go through, know why they need to do it, and want to take her out of the hospital right then. The doctor came in to consult with us, told us everything they would be doing, and made a point I will never forget. She said we do have the option to not do the surgery, but her gait will get worse and worse as she gets older and as she grows. I've never thought of it that way. Literally she might have gotten to the point that she really couldn't walk. As horrible of an experience as it is, there's perspective in that. It's a very encouraging thought.
Finally the time for the surgery came. Watching someone take your daughter away while they cry is also a horrible experience.
I took Mirinda to City Creek to go to the Disney store to buy Priya a present. Mirinda ended up getting some presents too. She deserved them too. That kid was so good in a rough situation. I'm immensely proud of both my girls. They both got pajamas (Priya got Rapunzel, and Mirinda got Fancy Nancy, though we had a talk again about not acting like Fancy Nancy) and they got some American flag Minnie Mouse shirts. After lunch I took Mirinda to the zoo (holy crap they gouge you on the price), and planned on staying there the rest of the afternoon. They said it would be 4-6 hour surgery. It was 3 hours and 15 minutes. I couldn't believe it. Once they got in there they said it wasn't nearly as bad off as they thought it was, and it was very quick. We had only been at the zoo for about an hour, but I've never been so happy to waste money. We came back to the hospital, and able to see her wake up. They had her in the SCU, and I was extremely grateful for that.
Shriner's hospital is a really different place. The staff is so incredible. It also puts in perspective how many kids have problems similar to Priya, and worse then Priya. The parents all realize we're in similar boats. There is a wonderful feeling there. I've never experienced anything quite like it.
Priya was in the hospital until Friday, and she was pissed about it. I don't blame her. She was sassy as ever. Each time the nurses came in she told them to give her medicine or she'd spank their bums. They started taking turns because they loved hearing her say that so much.
Finally on Friday we were able to take her home. The first couple days were rough, I'm not going to lie. Saturday I was having a pity party for myself because of everything that needed to be done, but I got over that. The girls are what matter.
Over the last week I've seen Priya improve dramatically. She is mad that she is in the cast, and honestly I would be too. But we keep reminding her that she'll be able to run and play in the water and do everything she wants to do very soon. It was amazing to see the X-Ray of what her bone looked like before and what it looks like now. Literally her bone jutted out at a 90 degree angle and then came down. I'm amazed she got around as well as she did. Now it goes straight down like a leg should. She's going to love it!
She's doing great with the pain control. They did give her some pretty heavy pain meds which we used for the first week, and now she's on just tylenol and ibuprofen. She can now lay on her stomach and lift herself up with her hands. I wouldn't be surprised if she started crawling around soon.
June 11 is the next appointment. 3 weeks from Tuesday. It's given me a new found respect for people who have to deal with this type of thing permanently. It is much harder to do everything, but we know it's for a limited time. Mad respect to parents that deal with these type of things all the time.
If you would like to visit you are welcome. She is doing so well we let her go to school this week and are taking her out of the house more. We're trying to help her feel like she's not missing out on anything.
On another note, I wrote a few months ago about a podcast my friend Jim Bob and I are going to be starting. We've bought the equipment, and we'll be recording soon. It's going to be called Snooty and Slack Jaw's Food Review. I'm a food snob and Jim Bob is a slack jawed yokel (when it comes to food) so we'll be reviewing local places in Utah, and some chains that I really don't like, because it's fun for me. So, please be watching for that and support us!
Again, thank you to everyone for the prayers and good vibes sent our way. We have felt them, and are grateful.

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